Best Practices For Providing Transition Services For Children With Down’s Syndrome: Potential Applications for Saudi Arabia

Document Type : Original Article

Author

University of Akron

Abstract

In Saudi Arabia, students with intellectual disabilities are typically educated in segregated environments and live their lives in isolation from mainstream society. This lifelong isolation severely limits their prospects for achieving positive quality of life outcomes such as steady employment or independent living. Fifty years ago, this experience was also quite typical of this population in other countries, such as the United States. However, in the intervening years, greater efforts have been made to improve the lot of the intellectually disabled, and much has been learned about what works and what does not.
A major transition in anyone’s life is the one from school to adulthood. This transition can be even more daunting for persons with intellectual disabilities. For this reason, transition services are an important feature of special education in the United States and many European countries.
This paper provides  an overview of currently accepted best practices in transition planning for students with Down Syndrome. Learning in an inclusive environment provides an important foundation upon which to build transition services. With this foundation in place, four elements of a transition plan were found to contribute strongly to the successful transition to adulthood for a student with Down Syndrome. First is the extent to which the student’s ability to make (or at least have a voice in) the decisions that affect him/her (self-determination). Second is the extent to which the student is involved in shaping his/her own IEP. Third, the transition plan requires a high level of collaboration among the participating parties (student, family, teachers, community members, agencies, etc.). Finally, it was found that students can benefit greatly from participating in community based activities while in school as preparation for becoming fully participating members of that community.

References: Agran, M., Blanchard, C., Wehmeyer, M., and Hughes, C. (2002). Increasing the problem-solving skills of students with developmental disabilities participating in general education. Remedial and Special Education, 23, 279-288. Agran, M. & Wehmeyer, M. (2000). Promoting Transition Goals and SelfDetermination Through Student Self-Directed Learning: The Self-Determined Learning Model of Instruction. Education and Training in Mental Retardation and Developmental Disabilities, 35 (4), 351-364. Al-Jadid, M.. (2013). Disability in Saudi Arabia. Saudi Medical Journal, 34 (5), 453-460. Alnahdi, G.(2013). Transition Services for Students with Mild Intellectual Disability in Saudi Arabia. Education and Training in Autism and Developmental Disabilities, 48 (4), 531–544. Al-Qabousi, S. (2014). Government to bear cost of treating kids with autism and Down Syndrome. Saudi Gazette. Retrieved from http://www.saudigazette.com.sa/index.cfm?method=home.regcon&c ontentid=201 40918218572 Alquraini, T. (2010). Special Education In Saudi Arabia: Challenges, Perspectives, Future Possibilities. International Journal of Special Education, 25 (3), 139-147. Baer, R., Daviso, A., Flexer, R.; Queen, R. & Meindl, R. (2011). Students with intellectual disabilities: Predictors of transition outcomes. Career Development and Transition for Exceptional Individuals,34 (3), 132-141. Baker, E., Wang, M., & Walberg, H. (1994). The effects of inclusion on learning. Educational Leadership, 52, 33-35 Benz, M., Lindstrom, L., & Latta, T. (1999). Improving collaboration between schools and vocational rehabilitation: The youth transition program model Improving collaboration between schools and vocational rehabilitation: The youth transition program model. Journal of Vocational Rehabilitation, 13 (1), 55-63. Benz, M. R., Lindstrom, L., & Yovanoff, P. (2000). Improving graduation andemployment outcomes of students with disabilities: Predictive factors and studentperspectives. Exceptional Children, 66 (4), 509‐ 529. مجلة البحث العلمى فى التربیة العدد العشرون لسنة ٢٠١٩م ٦٥٥ Burgstahler, S. (2001). A collaborative model promotes career success for students with disabilities: How DO-IT does it. Journal of Vocational Rehabilitation, 16 (3-4), 209-216. Cole, C., Waldron, M., Majd, M. and Hasazi, S. (2004) Academic Progress of Students Across Inclusive and Traditional Settings. Mental Retardation, 42 (2), 136- 144. Collaboration to Promote Self-Determination (n.d.). Member organizations. Retrieved from http://thecpsd.org/who-weare/partners/ Dunst, C. (2002). Family-Centered Practices: Birth through High School. Journal of Special Education, 36 (3), 139-47 Dubberly, R. (2012) Community-Based Instruction (CBI) as a Component of a Successful Transition Plan for Students with Intellectual Disabilities. Journal of the American Academy of Special Education Professionals, 35-46. Retrieved from http://aasep.org/fileadmin/user_upload/Protected_Directory/JAASEP /JAASEP_ 2012/Winter_2012/CommunityBased_ Instruction_ Component_of_Successful_ Transition_Plan_ Students _w_Intellectual_ Disabilities.pdf Edmondson, C. A., & Cain, H. M. (2002). The spirit of the Individuals with Disabilities Education Act: Collaboration between special education and vocational rehabilitation for the transition of students with disabilities. Journal of Applied Rehabilitation Counseling, 33 (4), 10-14. El Mouzan, M, Al Salloum, A, Herbish A, Qurachi, M, & Al Omar A. (2008). Consanguinity and major genetic disorders in Saudi children: a community-based cross-sectional study. Annals of Saudi Medicine, 28 (3),169-173. European Association of Service Providers for Persons with Disabilities (2013). 10 Best Practices in employment support for people with disabilities. Retrieved from http://www.ytporegon.org /sites/default/ files/fileattachments/best%20practices%2 0publication% 20EAS%20007-13_ok.pdf Gartin, B. & Murdick, N. (2005). The IEP. Remedial and Special Education, 26 (6), 327- 340. Gerrard, L. (1994). Inclusive Education: An Issue of Social Justice. Equity and Excellence in Education, 27, 58-67. مجلة البحث العلمى فى التربیة العدد العشرون لسنة ٢٠١٩م ٦٥٦ Hunt, P., Farron-Davis, F. Beckstead, S., Curtis, D., & Goetz, L. (1994). Evaluating the effects of placement of students with severe disabilities in general education versus special education. Journal of the Association for Persons with Severe Handicaps, 19 (3), 200-214. Jain, R., Thomasma, D. & Ragas R. (2002). Down syndrome: still a social stigma. American Journal of Perinatology 19 (2), 99-108. Jameson, J. & McDonnell, J. (2010). Home and Community Living. In Pathways for Students With Intellectual and Developmental Disabilities (McDonnell, J & Hardman, M., Eds.) Newbury Park, CA:Sage Publications. Japan International Cooperation Agency Planning and Evaluation Department (2002). Country Profile on Disability: Kingdom of Saudi Arabia. Retrieved from http://siteresources. worldbank.org/ DISABILITY/Resources/Regions/MENA/JICA_Saudi_Arabia.pdf Katz, J., & Mirenda, P. (2002a). Including students with developmental disabilities in general education classrooms: Educational benefits. International Journal of Special Education, 17, 14–24. Katz, J., & Mirenda, P. (2002b). Including students with developmental disabilities in general education classrooms: Social benefits. International Journal of Special Education, 17, 25–35. Kim, K. & Turnbull, A. (2004). Transition to Adulthood for Students with Severe Intellectual Disabilities: Shifting toward Person-Family Interdependent Planning. Research and Practice for Persons with Severe Disabilities (RPSD), 29 (1), 53-57. Lachapelle, Y., Wehmeyer, M., Haelewyck, M.C., Courbois, Y., Keith, K.D., Schalock R, Verdugo M. & Walsh, P. (2005). The relationship between quality of life and self-determination: An international study. Journal of Intellect Disability Research, 49 (10), 740-744. Lee, S., Wehmeyer, M. L., Palmer, S. B., Soukup, J. H., & Little, T. D. (2008). Self- determination and access to the general education curriculum. The Journal of Special Education, 42, 97-107. Mansour, M. (2009). Employers' Attitudes And Concerns About The Employment Of Disabled People. International Review of Business Research Papers, 5 (4), 209-218 McDonnell, J. & Hardman, M., Eds. (2010). Successful Transition Programs. Los Angeles: Sage Publications. مجلة البحث العلمى فى التربیة العدد العشرون لسنة ٢٠١٩م ٦٥٧ McWilliam, R. (2006). What happened to service coordination? Journal of Early Intervention, 28(3), 166- 168. National Down Syndrome Society (n.d.). Life After High School. Retrieved from http://www.ndss.org/Resources/Transition-andBeyond/Life-After-High-School/ Niazi, M, al-Mazyad A, al-Husain M, al-Mofada S, al-Zamil F, Khashoggi T, & al-Eissa, Y. (1995).. Down's syndrome in Saudi Arabia: incidence and cytogenetics. Human Heredity, 45 (2), 65-69. Noonan, P., Morningstar, M., & Erickson, A. (2008). Improving Interagency Collaboration: Effective Strategies Used by HighPerforming Local Districts and Communities. Career Development for Exceptional Individuals, 31 (3), 132-143. Nota L, Ferrari L, Soresi S, Wehmeyer M. (2007). Self-determination, social abilities and the quality of life of people with intellectual disability. Journal of Intellect Disability L Research, 51 (11), 850-865. Oertle, K. M. (2007). Interagency collaboration: The importance of rehabilitation professionals’ involvement in transition. The Journal of Rehabilitation, 73, 36-44. Oregon Youth Transition Program (n.d.). YTP Selected as World's Top 10 Best Practices in Employment Support for People with Disabilities. Retrieved from http://www.ytporegon.org/content/ytpselected-worlds-top-10-best-practices- employment-support-peopledisabilities Pace, B. (2001). Down syndrome. The Journal of the American Medical Association, 285 (8), 1112-1119. PACER Center for the TA Network. (n.d.). VR Research in Brief. Retrieved from www.pacer.org/tatra/pdf/vrbrief-youth-centers.pdf Palmer, S. B., & Wehmeyer, M. L. (2003). Promoting self-determination in early elementary school: Teaching self-regulated problem-solving and goal-setting. Remedial and Special Education, 24 (2), 115-26 Palmer, S. B., Wehmeyer, M. L., Gipson, K., & Agran, M. (2004). Promoting access to the general curriculum by teaching selfdetermination skills. Exceptional Children, 70, 427-439. مجلة البحث العلمى فى التربیة العدد العشرون لسنة ٢٠١٩م ٦٥٨ Parent & Educator Partnership. (2001). Self Determination Synthesis Project. Retrieved fromhttp://www.pepartnership.org /resources/ search/transition/self- determination-synthesis-project.aspx Parker, S. E., Mai, C. T., Canfield, M. A., Rickard, R., Wang, Y., Meyer, R. E., Anderson, P., Mason, C. A., Collins, J. S., Kirby, R. S., & Correa, A. (2010). Updated national birth prevalence estimates for selected birth defects in the United States, 2004–2006. Birth Defects Research Part A: Clinical and Molecular Teratology, 88, 1008– 1016. Renzaglia, A. & Hutchins.M. (1988). Establishing Vocational Training Programs for School-Age Students with Moderate ad Severe Handicaps. In Pueschel, S. (Ed.) The Young Person With Down Syndrome: Transition From Adolescence to Adulthood (109- 127). Baltimore, MD: Paul Brookes Publishing Co. Southwest Educational Development Laboratory (1995). Inclusion: The Pros and Cons. Issues... about Change, 4 (3). Retrieved from http://www.sedl.org/change/issues/issues43.html Sweeden, B., & Carter, E. W., & Trainor, A. A., & Ditchman, N., & Owens, L. (2009). Community-based summer work experiences of adolescents with high-incidence disabilities. The Journal of Special Education, 45, 89-103. Turnbull, H. R., Beegle, G., Stowe, M. J. (2001). The core concepts of disability policy affecting families who have children with disabilities. Journal of Disability Policy Studies, 12 (3), 133-143. United States Department of Labor, Office of Disability Employment Policy (n.d.) The Guideposts for Success. Retrieved from http://www.dol.gov/odep/categories/youth/ University of North Carolina, Charlotte. (2001). Self-Determination Synthesis Project. Final Performance Report. Villa, R, and Thousand, J., Eds. (2000). Restructuring for Caring and Effective Education. Baltimore, MD: Paul H Brookes Publishing Co. Wagner, M., Newman, L., Cameto, R., and Levine, P. (2006). The Academic Achievement and Functional Performance of Youth With Disabilities. A Report From the National Longitudinal Transition Study-2 (NLTS2). (NCSER 2006-3000). Menlo Park, CA: SRI International. Retrieved from http://files.eric.ed.gov/fulltext/ED494936.pdf مجلة البحث العلمى فى التربیة العدد العشرون لسنة ٢٠١٩م ٦٥٩ Wehman, P. (2006) Integrated Employment: If Not Now, When? If Not Us, Who? Research & Practice for Persons with Severe Disabilities, 31 (2), 122–126. Wehmeyer, M., (1998). The Self Determination Focus of Transition Goals for Students with Mental Retardation. Career Development for Exceptional Individuals, 21, 75-86, Wehmeyer, M., Agran, M., Palmer, S., Mithaug, D., & Blanchard, C. (1998). A teacher’s guide to the use of The Self-Determined Learning Model of Instruction: Adolescent version. Arlington, TX: The ARC of the United States. Wehmeyer, M. L., & Palmer, S. (2003). Adult outcomes for students with cognitive disabilities three years after high school: The impact of self-determination. Education and Training in Mental Retardation and Developmental Disabilities. 38, 131-144. Wehmeyer, M., Palmer, S., Agran, M., Mithaug, D., & Martin, G. (2000). Promoting causal agency: the self determined learning model of instruction. The Council for Exceptional Children, 66 (4), 439-453. Wehmeyer, M., & Schwartz, M. (1997). Self-Determination and Positive Adult Outcomes: A Follow-Up Study of Youth with Mental Retardation or Learning Disabilities. The Council for Exceptional Children, 63 (2), 245-255. Wehmeyer, M., & Schwartz, M. (1998). The Relationship Between SelfDetermination and Quality of Life for Adults with Mental Retardation. Education and Training in Mental Retardation and Developmental Disabilities, 33 (1), 3-12. Wehmeyer, M., Palmer, S., Agran, M., Mithaug, D. E., & Martin, J. E. (2000). Promoting causal agency: The self-determined learning model of instruction. Exceptional Children, 66, 439-453. Weijerman, M & Winter, J (2010). Clinical practice. The care of children with Down syndrome.. European Journal of Pediatrics, 169 (12), 1445–52. Wood, W., Karvonen, M., Test, D., Browder, D. & Algozzine, B. (2003). Promoting Student Self-Determination Skills in IEP Planning. TEACHING Exceptional Children, 36 (3), 8-16. مجلة البحث العلمى فى التربیة العدد العشرون لسنة ٢٠١٩م ٦٦٠ Wrightslaw (2006). IDEA 2004 Regulations: Summary of Changes. Retrieved from http://www.wrightslaw.com /idea/law/idea. regs. sumry. chngs.pdf